Tuesday, June 17, 2014

Need input if your son has limited use of upper body

I am preparing my presentations for Chicago and need your valuable input. I am looking for QUESTIONS/PROBLEMS and NEEDS that folks may have regarding their son (or themselves with DMD) regarding Assistive Technology for the age group 15 years on up. I am not a technology expert therefore I'm not looking for specific questions as to how a piece of technology works. I am looking to start with the NEEDS young men in that age group have so we can present solutions to the most common issues. Perhaps, your sons aren't in the age group but still have limited use of arms or upper body, that helps too.

The most effective way to use AT is to find a need FIRST, then find a piece of technology or modification that can gets that need met. Most folks start with the gear and work backwards trying to fit a kool piece of technology into their lives or their day. This rarely works for a variety of reasons we can discuss in another post.

For now, please weigh in below with the most common problems, needs or dilemmas in this age group only. I will then be able to start posting resources, answers and prepare a USEFUL presentation for Chicago.

I need your help to make sure I'm helpful! I want to make this for YOU.


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1 comment:

  1. UnknownJune 17, 2014 at 5:41 PM

    We live in California and my son, Ryan, is 16. He is going into his junior year in high school in August. I've been asking for an iPad ever since he was a freshman. They are dragging their heals. First they gave him a very bulky lap top with a key missing for him to drag from class to class. My problem is I'm a teacher too and get very hectic during the school year to follow up with these people and meet with them. I just wish they'd do their job and make it easier on him. He's getting weaker and more easily fatigued. He tries so hard in school, getting all A's and B's. I just want to make it easier for him!

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